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Publications

IDEOM Reviewed Publications Since 2013

  1. Gottlieb AB1, Armstrong AW. Psoriasis outcome measures: a report from the GRAPPA 2012 annual meeting. August 2013: J Rheumatol. 2013 Aug;40(8):1428-33. doi: 10.3899/jrheum.130456. Read More
  2. Gottlieb AB1, Armstrong AW1, Christensen R1, Garg A1, Duffin KC1, Boehncke WH1, Merola JF1, Gladman DD1, Mease PJ1, Swerlick RA1, Rosen CF1, Abernethy A1. The International Dermatology Outcome Measures initiative as applied to psoriatic disease outcomes: a report from the GRAPPA 2013 meetingJune 2014: J Rheumatol: 41(6):1227-9. doi: 10.3899/jrheum.140176. Read More
  3. Varada, Sowmya & Kim, Noori & Abernethy, April & Armstrong, April & Callis-Duffin, Kristina & Garg, Amit & Gottlieb, Alice. (2014). IDEOM: International Dermatology Outcome Measures - Proceedings from the First Meeting. Psoriasis Forum. 20a. 66-72. 10.1177/247553031420a00207. Read More
  4. B Gottlieb, Alice & A Levin, Adriane & Armstrong, April & Abernethy, April & Duffin, Kristina & Bhushan, Reva & Garg, Amit & Merola, Joseph & Maccarone, Mara & Christensen, Robin. (2014). The International Dermatology Outcome Measures Group: Formation of patient-centered outcome measures in dermatology. Journal of the American Academy of Dermatology. 72. 10.1016/j.jaad.2014.11.002. Read More
  5. James A. Solomon, M.D., Ph.D., Ryan Schuering, B.S. An Update on The IDEOM (International Dermatology Outcome Measures) Initiative to Restructure Current Psoriasis Outcome Assessment Measures to a Globally Uniform Set of Patient-Centric Outcome Measures for Use in Clinical Trials and Clinical Practice.Spring 2015: Psoriasis Forum, Vol. 21, No. 1. Read More
  6. Greb JE, Merola J, Garg A, Latella J, Howard L, Acharya N, Gottlieb AB, Perez-Chada LM, Singh S, Callis-Duffin K, Garg A, Gottlieb AB, Latella J, Armstrong, AW, Merola JF. The Psoriatic Disease Payer Advisory Panel. J. Drugs in Dermatol. 15: 641-644, 2016. Read More
  7. Greb JE, Merola J, Garg A, Latella J, Howard L, Acharya N, Gottlieb AB Elman SA, Merola JF, Armstrong AW, Callis Duffin K, Latealla J, Garg A, Gottlieb AB: The International Dermatology Outcome Measures (IDEOM) Initiative: A Review and Update. The Psoriatic Disease Payer Advisory Panel. J. Drugs in Dermatol. 15: 641-644, 2016. J.Drugs Dermatol. 16:119-124, 2017. Read More
  8. Thorlacius L, Ingram JR, Garg A, Villumsen B, Esmann S, Kirby JS, Gottlieb AB, Merola JF, Dellavalle R, Christensen R, Jemec GBE. Protocol for the development of a core domain set for hidradenitis suppurativa trial outcomes. BMJ Open 2017;7(2):e014733. Read More
  9. Callis Duffin K, Merola JF, Christensen R, Latella J, Garg A, Gottlieb AB, Armstrong AW. Identifying a Core Domain Set to Assess Psoriasis in Clinical Trials:A Combined Delphi Consensus Survey from the International Dermatology Outcome Measures Initiative, JAMA Dermatology, Published online June 6, 2018. doi:10.1001/jamadermatol.2018.1165 Read More
  10. Gottlieb AB, Merola JF, Chen r, Levi E, Callis Duffin K: Assessing clinical response and defining minimal disease activity in plaque psoriasis with the Physician Global Assessment and body surface area (PGA x BSA) composite tool: An analysis of apremilast phase 3 ESTEEM data. JAAD 77: 1178-1180, 2017. Read More
  11. Gottlieb AB, Kirby B, Ryan C,Naegeli AN, Burge R, Bleakman AP, Anatchkova MD, Yosipovitch G. The development of a patient-reported measure for assessment of genital psoriasis symptoms: The genital psoriasis symptoms scales (GPSS). Dermatology and Therapy published online. https://doi.org/10.1007/s135555-017-0213-2, 2017 Read More
  12. Gottlieb AB, Kirby B, Ryan C, Naegeli AN, Burge R, Bleakman AP, Anatchkova MD, Cather J: The development of the genital psoriasis sexual frequency questionnaire (GenPs-SFQ) to assess the impact of genital psoriasis on sexual health. Dermatology and Therapy, published online. https://doi.org/10.1007/s13555-017-0212-3, 2017 Read More
  13. Thorlacius L, Ingram JR, Villumsen B, Esmann S, Kirby JS, Gottlieb AB, Merola JF, Dellavalle R, Nielsen SM, Christensen R, Garg A and Jemec GBE, on behalf of the HIdradenitis SuppuraTiva cORe outcomes set International Collaboration (HISTORIC). A Core Domain Set For Hidradenitis Suppurativa Trial Outcomes: An International Delphi Process. Br J Dermatol. 2018 Apr 14. doi: 10.1111/bjd.16672 Read More
  14. Thorlacius L, Garg A, Ingram JR, Villumsen B, Theut Riis P, Gottlieb AB, Merola JF, Dellavalle R, Ardon C, Baba R, Bechara FG, Cohen AD, Daham N, Davis M, Emtestam L, Fernandez-Penas P, Filippelli M, Gibbons A, Grant T, Guilbault S, Gulliver S, Harris C, Harvent C, Houston K, Kirby JS, Matusiak L, Mehdizadeh A, Mojica T, Okun M, Orgill D, Pallack L, Parks-Miller A, Prens E, Randel S, Rogers C, Rosen CF, Choon SE, van der Zee HH, Christensen R, Jemec GBE. Towards global consensus on core outcomes for Hidradenitis Suppurativa research: An update from the HISTORIC consensus meetings I and II. Br J Dermatol. 2018;178(3):715-721. Read More
  15. Joseph F. Merola, David A. Amato, Kyoungah See, Russel Burge, Craig Mallinckrodt, Clement K Ojeh, Alice Gottlieb. Evaluation of sPGAxBSA as an outcome measure and treatment target for clinical practice. J. Invest. Dermatol. J Invest Dermatol. 2018 Mar 22. pii: S0022-202X(18)31741-X. doi: 10.1016/j.jid.2018.01.041. [Epub ahead of print] Read More
  16. Salame N, Perez-Chada LM, Singh S, Duffin KC, Garg A, Gottlieb AB, Latella J, Merola JF, Armstrong AW. Are Your Patients Satisfied? A Systematic Review of Treatment Satisfaction Measures in Psoriasis. Dermatology, 2018 Aug 17:1-9. Read More
  17. Salame N, Torres J, Sandhu J, Callis Duffin K, Garg A, Gottlieb AB, Latella J, Merola JF, Armstrong AW. Patient-Reported Outcome Measures for Pediatric Psoriasis: A Systematic Review and Critical Appraisal from International Dermatology Outcome Measures (IDEOM). Dermatology, in press Read More
  18. Joseph F. Merola, David A. Amato, Kyoungah See, Russel Burge, Craig Mallinckrodt, Clement K Ojeh, Alice Gottlieb: Evaluation of sPGAxBSA as an outcome measure and treatment target for clinical practice. J. Invest. Dermatol. J Invest Dermatol. 2018 Mar 22. pii: S0022-202X(18)31741-X. doi: 10.1016/j.jid.2018.01.041. [Epub ahead of print]; 138:1955-1961. 2018. Read More
  19. Perez-Chada LM, Cohen JM, Gottlieb AB, Duffin KC, Garg A, Latella J, Armstrong AW, Ogdie A, Merola JF. Achieving international consensus on the assessment of psoriatic arthritis in psoriasis clinical trials: an International Dermatology Outcome Measures (IDEOM) initiative. Archives of dermatological research. 2018 Aug 25:1-0. Read More
  20. MD, PhD Alice Gottlieb, Nicole Salame, BA, April W. Armstrong, MD, MPH, Joseph F. Merola, MD, MMSc, Sylvia Parra, MD, Junko Takeshita, MD, PhD, MSCE, Suephy C. Chen, MD, MS, John Latella, BS, MS, Marta Van Beek, MD, MPH; Journal of the American Academy of Dermatology: "A Provider Global Assessment Quality Measure for Clinical Practice for Inflammatory Skin Disorders" Read More
  21. Lourdes Perez-Chada, Vanina L Taliercio, Alice Gottlieb, Marta Van Beek, Kristina Callis Duffin, Margo Reeder, Joseph F Merola, Robert A Swerlick. "Achieving Consensus on Patient-Reported Outcome Measures in Clinical Practice for Inflammatory Skin Disorders On Behalf of International Dermatology Outcome Measures and the American Academy of Dermatology" Read More
  22. Perez-Chada L*, Salame N*, Ford A, Callis Duffin K, Gottlieb A, Garg A, Latella J, Merola JF and Armstrong A. Investigator and Patient Global Assessment Measures in Psoriasis for Clinical Trials: A Systematic Review on Measurement Properties from the International Dermatology Outcome Measures (IDEOM) Initiative. American Journal of Clinical Dermatology (In press)*co-primary authors Read More
  23. Lu JD, Hobbs MM, Huang WW, Ortega-Loayza AG, Alavi A. Indentification and evaluation of outcome measurement instruments in pyoderma gangrenosum: a systematic review. British Assoc of Dermatologists. 07 May 2020 published online. https://doi.org/10.1111/bjd.19027 Read More
  24. Perez-Chada LM*, Singh S*, Callas Duffin K, Garg A, Gottlieb AB, Latella J, Armstrong AW, Merola JF. International Dermatology Outcome Measures (IDEOM) Group 2016 New York Meeting: Meeting Summary And Data From The Psoriasis Working Group. JDD. 2017 Aug;16(8):770-7. PMID 28809992. *co-primary authors Read More
  25. Perez-Chada LM, Merola JF, Armstrong AW, Gottlieb AB. Report Of The Skin Research Workgroups From The GRAPPA 2018 Annual Meeting. The Journal of Rhuematology Suppl. 2019 Jun; 95:28-32. Read More
  26. Perez-Chada, LM; Gottlieb AB; Cohen J; Callis Duffin K; Garg A; Latella J; Armstrong AW; Ogdie A; Merola JF. Measuring Psoriatic Arthritis Symptoms, A Core Domain In Psoriasis Clinical Trials. Journal of the American Academy of Dermatology. 2019 June 1 doi: 10.1016/j.jaad.2019.05.075. Read More
  27. Perez-Chada LM, Taliercio VL, Gottlieb AB, Van Beek M, Duffin FC, Reeder M, Merola JF, Swerlick RA. Achieving Consensus On Patient-Reported Outcome Measures In Clinical Practice For Inflammatory Skin Disorders: On Behalf Of The International Dermatology Outcome Measures And The American Academy Of Dermatology. Journal of the American Academy of Dermatology. 2019 Sep13. doi: 10.1016/j.jaad.2019.09.008 Read More
  28. Kornmehl H, Duffin KC, Salame N, Perez-Chada LM, Singh S, Garg A, Gottlieb AB, Latella J, Merola JF, Armstrong AW. Examination of Treatment Satisfaction Instruments in Psoriasis: 2017 Results from the Psoriasis Working Group of the International Dermatology Outcome Measures (IDEOM). Dermatology. 2020 Jan 28:1-7. doi: 10.1159/000501582 Read More
  29. Perez-Chada LM; Balak, D; Cohen, J; Ogdie A; Merola JF; Gottlieb AB. Measurement properties of instruments assessing psoriatic arthritis symptoms for psoriasis clinical trials: a systematic literature review. Expert Review of Clinical Immunology. Expert Review in Clinical Immunology. 2020 Feb 8:1-7. doi: 10.1080/1744666X.2020.1724090 Read More
  30. Perez-Chada LM, Merola JF, Armstrong AW, Gottlieb AB. Report of the Skin Research Workgroups from the GRAPPA 2019 Annual Meeting. J Rheumatol Suppl. 2020 Jun;96:36-40. doi: 10.3899/jrheum.200125. PMID: 32482766. Read More
  31. Layton AM, Smith H, Thiboutot DM, Smith A, Whitehouse H, Ghumra W, Verma M, Tan J, Jones G, Gilliland K, Patel M, Otchere E, Eady EA. A Systematic Literature Review to Identify the Impacts of Acne and the Use of Questionnaires to Detect These Impacts. American Journal of Clinical Dermatology; DOI 10.1007/s40257-020-00564-6; In press.
  32. Layton AM, Thiboutot DM, Tan J. Reviewing the Global Burden of acne: how could we improve care to reduce the burden? BJD-2020-1723.R2 ; Early view. Read More
  33. Tan J, Miklas M. Developing a Core Outcome Set for Acne Clinical Trials: Towards standardization and harmonization. In Acne - Current Concepts and Management; in press, Nov 2020
  34. van Zuuren EJ, Arents BWM, Miklas M, Schoones JW, Tan J. Patient reported satisfaction with acne treatment: a systematic review. In revision post-submission Br Jour Derm. Sep 2020. Read More
  35. Tan J, Frey M, Thiboutot D, Layton A, Eady A. Identifying the impacts of acne: a Delphi survey of patients and clinicians. Journal of Cutaneous Medicine & Surgery. May/Jun 2020;24(3):259-266 Read More
  36. AM Layton, DM Thiboutot, J Tan. Reviewing the Global Burden of acne: how could we improve care to reduce the burden? BJD-2020-1723.R2 ; Early view
  37. Tan J, Miklas M. Developing a Core Outcome Set for Acne Clinical Trials: Towards standardization and harmonization. In Acne - Current Concepts and Management; in press Nov 2020
  38. van Zuuren EJ, Arents BWM, Miklas M, Schoones JW, Tan J. Patient reported satisfaction with acne treatment: a systematic review. In revision post-submission Br Jour Derm. Sep 2020.
  39. Tan J, Frey M, Thiboutot D, Layton A, Eady A. Identifying the impacts of acne: a Delphi survey of patients and clinicians. Journal of Cutaneous Medicine & Surgery. May/Jun 2020;24(3):259-266
  40. Goldfarb N, Lowes MA, Butt M, King T, Alavi A, Kirby JS (2020). Hidradenitis Suppurativa Area and Severity Index Revised (HASI-R): psychometric property assessment. Br J Dermatol.
  41. Goldfarb N, Ingram JR, Jemec GBE, Naik HB, Piguet V, Hyde MJ, Freese R, Lowes MA, Alavi A (2020). Hidradenitis Suppurativa Area and Severity Index (HASI): a pilot study to develop a novel instrument to measure the physical signs of hidradenitis suppurativa. Br J Dermatol 182(1):240
  42. Kirby JS, Butt M, King T (2020). Severity and Area Score for Hidradenitis (SASH): a novel outcome measurement for hidradenitis suppurativa. Br J Dermatol. 182(4):940
  43. Kirby JS, Thorlacius L, Villumsen B, Ingram JR, Garg A, Christensen KB, Butt M, Esmann S, Tan J, Jemec GBE. The Hidradenitis Suppurativa Quality of Life (HiSQOL) score: development and validation of a measure for clinical trials. Br J Dermatol. 2020 Aug;183(2):340-348.
  44. Kirby JS, Hereford B, Thorlacius L, Villumsen B, Ingram JR, Garg A, Butt M, Esmann S, King T, Tan J, Jemec GBE. Validation of global item for assessing impact on quality of life of patients with hidradenitis suppurativa. Br J Dermatol. 2020 Jun 29. doi: 10.1111/bjd.19344.
  45. Sarfo A, Butt M, Kirby JS. Br J Dermatol. 2020;182(1):218.
  46. Kirby JS, Moore B, Leiphart P, Shumaker C, et al. Br J Dermatol. 2020;182(1):24.
  47. HS; BMJ Open 2017;7(2):e014733; Br J Dermatol. 2018;178(3):715-721; Br J Dermatol. 2018;179(3):642-650
  48. Alison H. Kohna, Afsaneh Alavi, April W. Armstrong, Folawiyo Babalola, Amit Garg, Alice B. Gottlieb, Lesley Grilli, Gregor B. E. Jemec, John Latella, Kendall Marcus, Joseph F. Merola, Alex G. Ortega-Loayza, Daniel M. Siegel, Vibeke Strand, Jerry K. L. Tan, Lourdes M. Perez-Chada. Review Article International Dermatology Outcome Measures (IDEOM) – Report from the 2020 Annual Meeting. Read More
  49. Alison H. Kohn; Afsaneh Alavi; April W. Armstrong; Folawiyo Babalola; Amit Garg; Alice B. Gottlieb; Lesley Grilli; Gregor Borut Ernst Jemec; John Latella; Kendall Marcus; Joseph F. Merola; Alex G Ortega-Loayza; Daniel M. Siegel; Vibeke Strand; Jerry K.L. Tan; Lourdes M. Perez-Chada. Here, we provide an update of IDEOM activities that were presented at the 2020 IDEOM Virtual Annual Meeting (October 23–24, 2020). During the meeting, multiple IDEOM workgroups (psoriasis, psoriatic arthritis, hidradenitis suppurativa, acne, pyoderma gangrenosum, and actinic keratosis) shared their progress to date, as well as future directions in developing and validating Patient-Reported Outcome Measures. Read More
  50. Patient-Reported Outcome Measures for Health-Related Quality of Life in Patients With Acne Vulgaris: A Systematic Review of Measure Development and Measurement Properties. Read More
  51. A New Tool to Improve Communication Between Hidradenitis Suppurativa Patients and Health Care Providers. Read More

IDEOM in the News

  1. International group seeks to close gaps in psoriasis research - AAD Summer Academy Meeting News- 4.2.2014 Read More
  2. Patients become full partners in inflammatory arthritis and psoriasis research - Dermatology News -7.15.2014; By: Ted Bosworth, Dermatology News Digital Network. Read More
  3. IDEOM featured in Dermatology Daily 8.3.2018. Read More
  4. Academy, IDEOM Reach Consensus On Provider-Assessed Global Disease Severity Metric For Inflammatory Dermatoses - Dermatology Advisor 11.21.2018; By: Shiela Jacobs Read More
  5. Abstracts From the 2020 IDEOM Meeting Read More