Patient Voices: Stories from IDEOM’s Patient Research Partners
Welcome to Patient Voices, IDEOM’s new video series featuring candid conversations with our Patient Research Partners.
These powerful videos discuss challenging symptoms, getting the diagnosis, and the often long and winding road to finding effective treatment. We end with discussing the critical work these patients do in advocacy, research, and more as valued members of IDEOM.
We are immensely grateful to our Patient Research Partners for allowing us a glimpse into their lives with chronic, dermatologic conditions. We’re honored to get to share their stories with you.
We’ll be posting these stories one by one to give each person’s story space and time. Please check back regularly as new videos will be added biweekly.
Alisha B.
Psoriatic Disease Patient, IDEOM Psoriatic Disease Workgroup Member
Other Content from IDEOM’s Patient Research Partners
Chaquira Andrade Story
My name is Chaquira Andrade. I’m a 29-year-old female born in Hartford Connecticut, raised in New York, and currently living in Harlem, NY.
Pathway to Cancer Screening for Hidradenitis Suppurativa Patients
Patients with Hidradenitis Suppurativa (HS) often have additional severe comorbidities which, when added to an analysis of life expectancy, tends to translate to a reduction in life expectancy.
Video / Podcast: Patient and physician expectations – from diagnosis to the treatment of psoriatic disease.
A discussion featuring patients Jody Quinn and Hellen Wangui, chaired by Dr. Alice Gottlieb.
Part 1: Diagnosis of Psoriatic Disease
Part 2: Treatment of Psoriatic Disease