Connective Tissue Diseases Workgroup (encompasses CLE, DM, sclerosing disorders and other related conditions).
Initially focused on CLE:
- Expand upon a recently proposed ‘working’ core domain and core outcome measure set (COS) for CLE clinical trials, taking a formal approach to a consensus-based set through IDEOM
- Consider data needs to support the COS including SLR, application of OMERACT filter
- Consider unmet needs in outcome measure development for CLE, including revisions to existing IGA and other instruments.
- Development of a working core outcome set for cutaneous lupus erythematosus: a practical approach to an urgent unmet need - PubMed. Read More